Ataxia and Frailty
When I was a safety officer at Dartmouth, I did a fair amount of work on surgical/patient safety…. a big focus of ours was frailty-what we found was patients who tested positive had longer length of stay in the hospital and discharge to non-home settings. Frailty is not just aging but a defined medical condition. Frailty has been reported with other neurodegenerative conditions-like Parkinson’s or Alzheimer’s Disease, but not ataxia
Frailty and ataxia symptoms are common- fatigue, weight loss, cognitive decline. and muscle loss. Some questions that I have: is it the muscle loss leading to frailty? Should exercises focus on strength building-not just on balance? is this also progressive-(patients with ataxia for 5 years are less frail than someone with say 20 years)?
What I did hear was patients with ataxia recovered slowly after surgery, but we don’t know why. So what I would like to ask you suffering from this horrible disorder a small quiz-personal interest. Hopefully, it should take no more than 2 minutes. Here are the questions. If you do decide to answer them please send it to me as a me
- What type of ataxia do you have?
- When were you diagnosed?
- When was your surgery? (If you had any after you were diagnosed )
- Do you know where in your body the surgery was? (e.g. nose, abdomen, right knee, back)
- How long did you stay in the hospital to recover?
- Have you lost weight post diagnosis? Are you able to walk-is it slower? Yes No